This site is intended for patients and caregivers.
For healthcare professionals
It can be hard to remember everything you wanted to ask your doctor or recall which symptoms you had and when they occurred. Keeping a written record of how atypical-HUS is affecting you, questions you want to ask, and what your doctor tells you can help you to feel more in control.
Use our guide to document your symptoms, note questions as they occur to you, and look up definitions of medical terms. Bringing the guide to every appointment can help you to have more informed and more productive conversations with your doctor.
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